The goal is to provide funding toward innovative, leading edge research in the field of pediatric high risk leukemia and the fungal infections children are at risk for contracting while their body's immune systems are compromised during chemotherapy treatment. Currently, we are considering funding a research project directed at fighting zygomycosis which is the fungal infection that eventually claimed Hank's life. Researchers need to understand and develop new techniques and approaches involved in the treatment of this infection in order to improve outcomes for immuno compromised patients. In doing so, we will save future -Henry's- and their families from suffering as Henry's family did.
Partnership for Cures, the Henry Schueler 41 & 9 Foundation and Dr. Tom Walsh of the National Cancer Institute hosted a zygomycosis symposium to create a consensus on detection and treatment of the fungal infection.
Drs. Charles Mullighan at St. Jude Children’s Research Center and Steve Hunger at Denver Children’s Hospital to use the Children’s Oncology Network have now started the first ever gene review of the rare hypodiploid acute lymphocytic leukemia (HALL), the disease Hank Schueler had when he died. This study should take about a year and cost about $100,000.